On Sept. 12, Riverton Country Club in Cinnaminson will host a fundraiser golf tournament to benefit Cure SPG47.
Hereditary Spastic Paraplegia, type 47, otherwise known as “SPG47”, is an ultra-rare newly recognized neurodegenerative disease, resembling cerebral palsy. There are just four confirmed cases of this disease in the United States. One of those cases is Molly, the daughter of Riverton Country Club’s Head Golf Professional, Kevin Duffy and his wife Angela.
SPG47 is present at birth and causes severe, progressive spasticity and muscle weakness, as well as varying cognitive delays. In infancy, children with SPG47 have very low muscle tone, making it challenging for them to meet developmental milestones, such as walking. As they get older, they will develop spasticity, robbing them of the mobility that they work so hard to achieve. The goal of Cure SPG47 is to intervene before this becomes a reality.
Riverton Country Club has organized a fundraising golf tournament on September 12, 2017 to raise awareness for the disease and funds to push the much-needed research forward. Riverton has extended the invitation for this event to its current members and their friends and families. The response thus far has been inspiring, with many of the golf spots and sponsorship levels already sold out.
In addition, September 15, 2017 marks the one hundredth anniversary of the opening of the Donald Ross designed golf course at Riverton Country Club.
Riverton Country Club is inviting local media outlets to the club for a media day on September 12, 2017 for the fundraising golf tournament to benefit Cure SPG-47 and to help celebrate to centennial anniversary of the Donald Ross designed golf course. To learn more about this event, please visit www.rivertoncc.com/curespg47.
About Riverton Country Club:
Riverton Country Club is a family-oriented club committed to providing superior facilities, quality programs and a variety of services, for the benefit and enjoyment of the membership and their guests. Founded in 1900, Riverton boasts a Donald Ross designed golf course and amenities for the whole family, just minutes from Center City Philadelphia. From amazing greens to stellar dining,a swimming pool, tennis courts, even a historic bowling alley, Riverton has something for everyone to enjoy.
If you would like more information about this event, please contact Elena Patch at (856)829–5500 x12 or email at elena@rivertoncc.com.
